The Aged Care Act embodies an older person’s rights including the right to equitable access to palliative care and end of life care. It emphasises the importance of advance care planning giving individuals a way to make decisions about their future health and personal care needs. It also outlines provider responsibilities.
Standard 5 describes the quality of clinical care older people can expect when receiving aged care services, wherever they are in Australia. This is a provider responsibility. Effective implementation of Standard 5 is reliant on the systems and processes from Standards 1-7. Outcome 5.7 addresses palliative care and end of life care.
Remember, care at the end-of-life needs to be person centred and should be evidence-based, clinically appropriate and timely.
Standard 5 Expectation statement for older people
I receive person-centred, evidence-based, safe, effective, and coordinated clinical care services by health professionals and competent aged care workers that meets my changing clinical needs and is in line with my goals and preferences.
Provider Responsibilities: Palliative care and end of life care
Providers have three main responsibilities with respect to Outcome 5.7. They are
- To recognise and address the needs, goals and preferences of individuals for palliative care and end-of-life care and preserve the dignity of individuals in those circumstances.
- To ensure that the pain and symptoms of individuals are actively managed, with access to specialist palliative and end-of-life care when required.
- To make sure that supporters of individuals and other persons supporting individuals are informed and supported, including during the last days of life.
What needs to be in place?
Five sets of processes need to be in place:
- Processes to recognise the need for palliative care, that support the person approaching the end of life and respond to changing needs.
- Processes that facilitate end of life planning conversations, consider options and choices, and review advance care planning goals and documents.
- Making use of comprehensive care processes to plan and deliver palliative care which recognise the importance of comfort and dignity, the person’s spiritual, cultural and psychosocial needs, assessment and management of pain and symptoms, shares information and involves specialist equipment and specialist services as needed and provides an appropriate environment for palliative care.
- Communication so the older person and family are aware of end of life and have access to loss and bereavement information.
- Care processes that recognise and respond to last days of life, ensure medications are available to manage symptoms, provide care that supports the person physically and minimises undesired transfers to hospitals.